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In August 2014, our friends Catherine and Jonathan welcomed their second baby boy into the world. William was diagnosed with Prader Willi Syndrome at birth. He spent his first 3 weeks in the Special Care Baby Unit at Wrexham Maelor Hospital and was fed through a Nasal Gastric tube in until he was 16 weeks. Suffering from low muscle tone, Wills is a true fighter and has just recently started to walk!! #willpower On Sunday 10th September, my husband Richard and I will be taking on the Tough Mudder Half at Cholmondely Castle. Not fully knowing what is going to face us on the day, this is going to take strength, determination and team work to tackle this enduring physical challenge. If a little boy like William can take his challenges in his stride then so can we #willpower!!! Please sponsor us to support much needed research into this syndrome, helping us to contribute to an even brighter future for William and his family and all the other people who are affected by PWS.
Zoe Brunswick - Tough Mudder #willpower started this fundraiser on 15/5/17 Via JustGiving
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.
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